It is hard to believe that I haven’t written in 2 years. Sometimes I feel that we are frozen in time with Mom. She lays in bed most of the day, although she does sit in her wheelchair (more like a wheel-lounge-chair), for a few hours each day. I’m sure she can’t see; her eyes are so cloudy and there is no focus on anyone visiting. She sleeps ninety-nine percent of the day, however, even with her eyes closed, she manages to eat well when someone feeds her. The CNAs are so surprised that she eats so well, but I’ve assured them that my mom and I have many things in common, one of them being that we will take “just one more bite” before we leave our bodies. This always gets a laugh!
I’ve been dreaming of my mother more lately. She is her former, healthy self, involved in whatever story my mind is dreaming up. It feels so normal for her to be with me. I don’t seem to remember that she is actually old and has deteriorated so much. In other dreams I have, I am aware that who I am dreaming of is gone, but not in my dreams of Mom. She is there: alive, vibrant, fun -sharing the adventure of my dream.
There is so much that I want to tell her. So much I want to ask her. I want to tell her about my career, my family, my adventures. I want to tell her my thoughts on life and how grateful I am for my life. I want to ask her about more family history. I want to ask her for advice that only a mother can give.
I want to share holidays with her, go out to dinner with her, share tea in the late afternoon as the sun begins to light the sky on fire, travel with her – see a new part of the world together.
I want to thank her, too, for her unconditional love. She really understood me. She took time to share important things with me – things that help me understand who I am – to accept myself. I was not always the easiest, in fact, I was a difficult teen – VERY difficult. Yet, she seemed to be able to support me even when I was being the worst version of myself. She showed me what loving your children really meant. She did it her way, and she did it well.
Now, when I go to see her, it is not as often. Mostly, it is because the pain I feel when I am with her is overwhelming at times. I can’t understand why she is still living in her limited body. She seems comfortable, but she does have a roommate that cries out much of the day. It is so unsettling and although we have tried to have a new roommate put into the room, we have not been successful thus far. I can see that when the woman cries out, relentlessly, because she is so anxious and upset in her own dementia, my mother gets restless, clearly bothered by it. The funny thing is that my mom had patience for so many things at times. She could be accepting in ways that I really admire. So, I think, on some deep level, maybe, my mother has empathy for the woman. I know that this may sound crazy to some, but I often wonder what my mother really understands. There is no way for me to know.
My mother is 92-years-old. Her diagnosis came at 73, but the signs were apparent in her late 60s. I can’t express how much I will grieve her physical loss. Somehow, being able to talk at her or to her still makes me feel connected. I know she would be very philosophical if she were in my shoes, and it was her mother who was still alive. She would tell me to learn the lessons it offers (which I do), offer it up (the pain I feel; advice from a Catholic mom), and accept it as it is. So, heeding her advice, I pay attention to what this teaches me about life, about myself, and about my mom; I pray for guidance; and I accept that I have no control of her life. I can only make sure she is safe and cared for.
I’m amazed that I am still having this conversation.
Blessings to all who are on this journey.